Adventures in autism

I have a son with autism. He is simultaneously the most difficult of the kids, and the most surprising. He is a beautiful child, with bright brown sparkling eyes, and a mischievous grin. He loves playing with legos. The kid is a master at the form, at 5. His attention to detail is somewhat astounding. After his sister (who is 9) finished a piano recital, he went up to the piano, and played exactly what she had. He had never taken a lesson.

But if you go to a particular place, and don’t get him that particular thing, all hell will break loose. We got him some ice cream at a gas station. If he doesn’t get ice cream at that particular gas station, life with get loud and difficult immediately. He will bang his head hard, scream at the top of his lungs, hit anybody who comes within range, overturn food, baskets of vegetables, whatever comes handy. It is difficult to see the amazing child within, because of the difficulty of the reaction when he doesn’t get what he wants. Thankfully he can talk (some) and can look you in the eye etc. I know that his autism is not near what other parents have to cope with. I should be thankful, but it is very hard for me to handle him. My husband (much more patient than I, nicer than I am) has to handle him most of the time.

Mental health problems are rampant in this country, and yet don’t seem to get addressed particularly effectively. The meds have tons of side effects, and for a lot of people are not particularly effective. As far as I know, there isn’t a specific treatment for autism, just meds to control the most difficult symptoms.  When is the medical community going to address this?

One thought on “Adventures in autism

  1. The medical community is a disgrace in this country. It is run by the insurance and pharmaceutical companies. That is why your child only has meds to treat his major symptoms. Healing people doesn’t pay the bills for big pharma. They want people medicated. I know. I have CRPS and have been on meds for 22 years. It is appalling how patients are treated. Sorry for the rant, but you have to be experiencing a lot of what I go through.

    I know it’s tough, but when you get frustrated, give both of you a timeout if possible. Do as much research as possible. I found out a lot that my doctor didn’t know, and ended up getting cutting edge treatment at UCLA because I found it through a neuroscience journal in the library.

    I will keep your whole family in my prayers. Melinda

    Liked by 1 person

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